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NCT01518400Recruiting

LIFE Cancer Survivorship Database for Pediatric Cancer

A Research Database for Survivors of Childhood Cancer

Source: ClinicalTrials.gov · Last updated 4 Jun 2026

Brief summary (registry, in English)

The purpose of this study is to develop a mechanism for utilizing the comprehensive clinical database of childhood cancer survivors at Childrens Hospital Los Angeles (CHLA) for research purposes. Using clinical information obtained from follow-up visits of childhood cancer survivors, the database will focus on interventions to improve health status and health-related quality of life in childhood cancer survivors. This study allows for establishment and analyses of a research database for LIFE survivors by the investigators listed herein. Over the last three decades, there has been marked improvement in survival following childhood cancer, with 5-year survival rates now approaching 80%. However, the use of cancer therapy at an early age can result in complications that may not be apparent until years later as the child matures. These resulting complications, called late effects, are principally related to the specific therapy employed and the age of the child at the time the therapy was administered. Late effects may affect virtually every body system and substantially impair quality of life. As many as two-thirds of childhood cancer survivors develop at least one late effect as a result of treatment, and approximately one-third have a late effect classified as severe or life threatening.

Status (registry)
Recruiting
Study type
Observational
Enrollment
5000 (estimated)
First submitted
11 Jan 2012
Start date
Feb 2009
Primary completion date
Jan 2050
Lead sponsor
Children's Hospital Los Angeles
NCT number
NCT01518400

What you commit to

  • Study type: Observational
  • Planned participants: 5000
  • From Feb 2009 to the primary completion date, Jan 2050
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Who the study is looking for

  • Been diagnosed with cancer or similar disease
  • Been diagnosed with cancer at 21 years of age or younger
  • Be currently off treatment and disease free

Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
Children's Hospital Los Angeles
Coordinator of this site? Confirm its status
Los AngelesUnited StatesRecruiting

This page is information, not medical advice. Discuss any trial with your doctor.