NCT01656447Recruiting
Scleroderma Registry & Repository at the Hospital for Special Surgery
The Scleroderma Registry & Repository
Source: ClinicalTrials.gov · Last updated 26 Nov 2025
Brief summary (registry, in English)
The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 300 (estimated)
- First submitted
- 1 Aug 2012
- Start date
- Aug 2006
- Primary completion date
- Jan 2030
- Lead sponsor
- Hospital for Special Surgery, New York
- Diseases
- Systemic sclerosis (scleroderma)
- NCT number
- NCT01656447
What you commit to
- Study type: Observational
- Planned participants: 300
- From Aug 2006 to the primary completion date, Jan 2030
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Age
- Individuals younger than 18 years of age
- Individuals older than 18 years of age without Scleroderma
Who the study is looking for
- Individuals older than 18 years of age with Scleroderma
Age in the registry: 18 years to - · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Hospital for Special Surgery Coordinator of this site? Confirm its status | New York | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.