NCT01885767Recruiting
The NF Registry Sponsored by the Children's Tumor Foundation
The NF Registry Sponsored by Children's Tumor Foundation
Source: ClinicalTrials.gov · Last updated 22 Oct 2026
Brief summary (registry, in English)
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 20000 (estimated)
- First submitted
- 22 May 2013
- Start date
- Jun 2012
- Primary completion date
- Jun 2030
- Lead sponsor
- The Children's Tumor Foundation
- Diseases
- Childhood cancers
- NCT number
- NCT01885767
What you commit to
- Study type: Observational
- Planned participants: 20000
- From Jun 2012 to the primary completion date, Jun 2030
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other illness
- Failure to complete account registration and consent
Who the study is looking for
- Diagnosed with NF1
- Diagnosed with NF2-related schwannomatosis
- Diagnosed with Schwannomatosis
Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Children's Tumor Fundation Coordinator of this site? Confirm its status | New York | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.