Patient Registry of the European Friedreich's Ataxia Consortium for Translational Studies (EFACTS)

Brief summary (registry, in English)

This is a multi-centre, multi-national, prospective, observational study of Friedreich's Ataxia (FRDA) with a control group to: * obtain natural history data on individuals affected by FRDA * relate clinical assessments and results from proteomic analyses * expedite identification and recruitment of participants for clinical trials * develop and validate sensitive and reliable outcome measures for detecting onset and change over the natural course of FRDA which may also be potential outcome measures for use in future clinical trials and clinical care * plan for future research studies

What you commit to

• Study type: Observational
• Participants enrolled: 1200
• From May 2010 to the primary completion date, Dec 2024
• 16 sites in 10 countries
• Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Who the study is looking for

Sex: All · Accepts healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (16)

Sites in registry order. Pick your city on the disease page to sort them by distance.