NCT02407431Active, not recruiting
PaTH Clinical Data Research Network (CDRN) Idiopathic Pulmonary Fibrosis (IPF) Clinician Patient Partnership Cohort
Source: ClinicalTrials.gov · Last updated 3 Sept 2026
Brief summary (registry, in English)
The purpose of the PaTH Network IPF Clinician-Patient Partnership Cohort is to use clinical data from electronic health records (EHR) and patient reported outcomes (PRO) to answer questions of clinical importance to patients with Idiopathic Pulmonary Fibrosis, providers, and other stakeholders.
- Status (registry)
- Active, not recruiting
- Study type
- Observational
- Enrollment
- 1000 (estimated)
- First submitted
- 30 Mar 2015
- Start date
- 1 Mar 2015
- Primary completion date
- 31 Jul 2030
- Lead sponsor
- University of Pittsburgh
- Diseases
- Idiopathic pulmonary fibrosis
- NCT number
- NCT02407431
What you commit to
- Study type: Observational
- Planned participants: 1000
- From 1 Mar 2015 to the primary completion date, 31 Jul 2030
- 5 sites in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- Lung transplant
Age
- Age \<18 years
Other
- Deceased
- Not proficient in English
- Has not had at least one outpatient encounter in the past 18 months at the PaTH health system's pulmonary specialty clinic through which they are recruited
- Already enrolled in the PaTH Clinician-Patient Partnership Cohort at another PaTH institution
Who the study is looking for
- The target study population is adults identified as having IPF (through the PaTH IPF computable phenotype algorithm or a local IPF registry).
Age in the registry: 18 years to 100 years · Sex: All · Does not accept healthy volunteers
Sites (5)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Johns Hopkins University Coordinator of this site? Confirm its status | Baltimore | United States | Unknown status |
| Jody McCullough Coordinator of this site? Confirm its status | Hershey | United States | Unknown status |
| Anuradha Paranjape Coordinator of this site? Confirm its status | Philadelphia | United States | Unknown status |
| University of Pittsburgh Coordinator of this site? Confirm its status | Pittsburgh | United States | Unknown status |
| University of Utah Coordinator of this site? Confirm its status | Salt Lake City | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.