NCT02848274Recruiting
ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome
Prospective Multicenter International Observational Study for Determination of a Cutaneous Lymphoma International Prognostic Index Model and Impact of Major Therapies in Patients With Advanced Mycosis Fungoides and Sézary Syndrome
Source: ClinicalTrials.gov · Last updated 22 Oct 2025 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 2000 (estimated)
- First submitted
- 25 Jul 2016
- Start date
- 1 Oct 2016
- Primary completion date
- 31 Mar 2027
- Lead sponsor
- Stanford University
- Diseases
- Childhood cancers
- NCT number
- NCT02848274
What you commit to
- Study type: Observational
- Planned participants: 2000
- From 1 Oct 2016 to the primary completion date, 31 Mar 2027
- 13 sites in 7 countries
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center
Other
- Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage
- Exclude one-time consultation type of new patients.
Who the study is looking for
- Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center
- Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available
Sex: All · Does not accept healthy volunteers
Sites (13)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Hospital Italiano de Buenos Aires Coordinator of this site? Confirm its status | Buenos Aires | Argentina | Recruiting |
| Peter MacCallum Cancer Center Coordinator of this site? Confirm its status | Melbourne | Australia | Recruiting |
| University of Sao Paulo Medical School Coordinator of this site? Confirm its status | São Paulo | Brazil | Recruiting |
| Peking University First Hospital Coordinator of this site? Confirm its status | Beijing | China | Recruiting |
| University Hospitals Birmingham Coordinator of this site? Confirm its status | Birmingham | United Kingdom | Recruiting |
| The University of Tokyo Coordinator of this site? Confirm its status | Tokyo | Japan | Recruiting |
| University of Texas, Southwestern Coordinator of this site? Confirm its status | Dallas | United States | Recruiting |
| City of Hope Coordinator of this site? Confirm its status | Duarte | United States | Recruiting |
| Hackensack University Medical Center Coordinator of this site? Confirm its status | Hackensack | United States | Recruiting |
| University of Iowa Coordinator of this site? Confirm its status | Iowa City | United States | Recruiting |
| Stanford University, School of Medicine Coordinator of this site? Confirm its status | Palo Alto | United States | Recruiting |
| University of Pittsburg Coordinator of this site? Confirm its status | Pittsburgh | United States | Recruiting |
| University of Utah Hospital Coordinator of this site? Confirm its status | Salt Lake City | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.