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NCT02867033Active, not recruiting

National Clinical-biological Prospective Cohort of Incident Cases of Aggressive Fibromatosis (ALTITUDES)

National Clinical-biological Prospective Cohort of Incident Cases of Aggressive Fibromatosis

Source: ClinicalTrials.gov · Last updated 30 Mar 2026

Brief summary (registry, in English)

The purpose of this study is to constitute the French largest Aggressive fibromatosis cohort.

Status (registry)
Active, not recruiting
Study type
Interventional
Enrollment
628 (actual)
First submitted
15 Jul 2016
Start date
22 Mar 2016
Primary completion date
Nov 2030
Lead sponsor
Centre Oscar Lambret
NCT number
NCT02867033

What you commit to

  • Study type: Interventional
  • Participants enrolled: 628
  • From 22 Mar 2016 to the primary completion date, Nov 2030
  • 39 sites in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Other

  • Administrative or legal measure of liberty privation
  • Patient not able to give consent or unwilling to provide consent

Who the study is looking for

  • Incident Case of aggressive fibromatosis in France, diagnosed after 01/01/2016
  • Confirmed diagnosis by the French anatomopathological diagnosis network (including search for mutation of the β-Catenin Gene, CTNNB1)
  • Affiliation to the National Health System
  • Informed consent signed (both parents signature for non adult patients)

Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (39)

Sites in registry order. Save your city in your profile to sort them by distance.

SiteCityCountrySite status
CHU Angers
Coordinator of this site? Confirm its status		AngersFranceUnknown status
Institut de Cancerologie de l'Ouest Paul Papin
Coordinator of this site? Confirm its status		AngersFranceUnknown status
CHU de Besançon
Coordinator of this site? Confirm its status		BesançonFranceUnknown status
Institut Bergonie
Coordinator of this site? Confirm its status		BordeauxFranceUnknown status
Hôpital des enfants
Coordinator of this site? Confirm its status		BordeauxFranceUnknown status
Centre François Baclesse
Coordinator of this site? Confirm its status		CaenFranceUnknown status
CHU de Caen-Côte de Nacre
Coordinator of this site? Confirm its status		CaenFranceUnknown status
Centre Jean Perrin
Coordinator of this site? Confirm its status		Clermont-FerrandFranceUnknown status
Centre Georges François Leclerc
Coordinator of this site? Confirm its status		DijonFranceUnknown status
CHU de Grenoble- Hôpital Couple Enfant
Coordinator of this site? Confirm its status		GrenobleFranceUnknown status
Centre Oscar Lambret
Coordinator of this site? Confirm its status		LilleFranceUnknown status
Centre Leon Berard
Coordinator of this site? Confirm its status		LyonFranceUnknown status
Hôpital la Timone Enfants Service Oncologie Pédiatrique
Coordinator of this site? Confirm its status		MarseilleFranceUnknown status
Institut Paoli-Calmettes
Coordinator of this site? Confirm its status		MarseilleFranceUnknown status
Hôpital la Timone Service Oncologie Médicale
Coordinator of this site? Confirm its status		MarseilleFranceUnknown status
ICM Val d'Aurelle
Coordinator of this site? Confirm its status		MontpellierFranceUnknown status
Hôpital Mère Enfant - CHU Nantes
Coordinator of this site? Confirm its status		NantesFranceUnknown status
Hôpital Archet 2
Coordinator of this site? Confirm its status		NiceFranceUnknown status
Institut Curie Département Oncologie Pédiatrique
Coordinator of this site? Confirm its status		ParisFranceUnknown status
Hôpital Saint-Antoine
Coordinator of this site? Confirm its status		ParisFranceUnknown status
Institut Curie Département Oncologie Médicale
Coordinator of this site? Confirm its status		ParisFranceUnknown status
Hôpital Cochin
Coordinator of this site? Confirm its status		ParisFranceUnknown status
Hopital Saint Louis
Coordinator of this site? Confirm its status		ParisFranceUnknown status
Hôpital d'Enfants Armand-Trousseau
Coordinator of this site? Confirm its status		ParisFranceUnknown status
CHU de Reims
Coordinator of this site? Confirm its status		ReimsFranceUnknown status
CHU de Rennes- Hôpital Sud
Coordinator of this site? Confirm its status		RennesFranceUnknown status
Centre Henri Becquerel
Coordinator of this site? Confirm its status		RouenFranceUnknown status
Institut Curie - Hôpital René Huguenin
Coordinator of this site? Confirm its status		Saint-CloudFranceUnknown status
Hôpital privé de la Loire
Coordinator of this site? Confirm its status		Saint-EtienneFranceUnknown status
CHU Saint Etienne Hôpital Nord
Coordinator of this site? Confirm its status		Saint-EtienneFranceUnknown status
Institut de Cancérologie de l'Ouest site René Gauducheau
Coordinator of this site? Confirm its status		Saint-HerblainFranceUnknown status
Institut de Cancérologie et d'Hématologie Universitaire de Saint Etienne
Coordinator of this site? Confirm its status		Saint-Priest-en-JarezFranceUnknown status
Hopitaux Universitaires de Strasbourg
Coordinator of this site? Confirm its status		StrasbourgFranceUnknown status
Institut Claudius Regaud
Coordinator of this site? Confirm its status		ToulouseFranceUnknown status
CHU Toulouse Hôpital des Enfants
Coordinator of this site? Confirm its status		ToulouseFranceUnknown status
CHU Tours - Clocheville
Coordinator of this site? Confirm its status		ToursFranceUnknown status
Institut de Cancérologie de Lorraine
Coordinator of this site? Confirm its status		Vandœuvre-lès-NancyFranceUnknown status
Hôpital d'Enfants- CHU Nancy
Coordinator of this site? Confirm its status		Vandœuvre-lès-NancyFranceUnknown status
Institut Gustave Roussy
Coordinator of this site? Confirm its status		VillejuifFranceUnknown status

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