NCT02912143Recruiting
German Pediatric Hemophilia Research Database
Source: ClinicalTrials.gov · Last updated 8 Mar 2023 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
The German Pediatric Hemophilia Research Database will collect data on the prophylactic and therapeutic use of factor concentrates, complications, outcome measures (joint scores, QoL) and living circumstances in newly diagnosed children with hemophilia.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 800 (estimated)
- First submitted
- 17 Sept 2016
- Start date
- 1 Jan 2017
- Primary completion date
- 31 Dec 2027
- Lead sponsor
- Goethe University
- Diseases
- Haemophilia
- NCT number
- NCT02912143
What you commit to
- Study type: Observational
- Planned participants: 800
- From 1 Jan 2017 to the primary completion date, 31 Dec 2027
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- no consent
Who the study is looking for
- hemophilia A or B
- FVIII/FIX \<1% to 25%
- informed consent
Age in the registry: - to 18 years · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Goethe University Coordinator of this site? Confirm its status | Frankfurt am Main | Germany | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.