NCT03032835Recruiting
Partners Calciphylaxis Biobank
Partners Calciphylaxis Biobank and Patient Registry
Source: ClinicalTrials.gov · Last updated 14 Sept 2026
Brief summary (registry, in English)
Calciphylaxis, a vascular calcification disorder, is a rare and serious disorder characterized by calcification of dermal arterioles. There are significant gaps in the understanding of the pathophysiology and risk factors for calciphylaxis. At present, there is no effective treatment. Uncertain pathobiology, rare incidence and lack of collaborative approach have been some of the major limiting factors towards treating calciphylaxis. The Partners Calciphylaxis Biorepository (PCB) aims to address these gaps within calciphylaxis research by utilizing existing and, when necessary, developing new infrastructure to support the consent of patients and the collection of dedicated samples for a calciphylaxis repository.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 300 (estimated)
- First submitted
- 23 Jan 2017
- Start date
- Jan 2017
- Primary completion date
- Dec 2030
- Lead sponsor
- Massachusetts General Hospital
- Diseases
- Chronic kidney disease
- NCT number
- NCT03032835
What you commit to
- Study type: Observational
- Planned participants: 300
- From Jan 2017 to the primary completion date, Dec 2030
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Age
- Patients \<18 years of age
Other
- Prisoners
Who the study is looking for
- Male or female ≥18 years old
- Skin lesions consistent with calciphylaxis diagnosis as determined by the treating clinician
- Informed of the investigational nature of the study and sign written Informed consent OR are eligible for surrogate consent process based on impaired decision making
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Massachusetts General Hospital Coordinator of this site? Confirm its status | Boston | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.