NCT03327779Recruiting
World Bleeding Disorders Registry
Source: ClinicalTrials.gov · Last updated 14 Aug 2023 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 20000 (estimated)
- First submitted
- 27 Oct 2017
- Start date
- 26 Jan 2018
- Primary completion date
- 31 Jan 2028
- Lead sponsor
- World Federation of Hemophilia
- Diseases
- Haemophilia
- NCT number
- NCT03327779
What you commit to
- Study type: Observational
- Planned participants: 20000
- From 26 Jan 2018 to the primary completion date, 31 Jan 2028
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- none
Who the study is looking for
- Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease
Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| World Federation of Hemophilia Coordinator of this site? Confirm its status | Montreal | Canada | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.