NCT04157049Recruiting
Alpha-1 Research Registry
Alpha-1 Research Registry Protocol
Source: ClinicalTrials.gov · Last updated 19 Aug 2026
Brief summary (registry, in English)
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 5000 (estimated)
- First submitted
- 6 Nov 2019
- Start date
- 20 Jun 2019
- Primary completion date
- 20 Jun 2029
- Lead sponsor
- Alpha-1 Foundation
- NCT number
- NCT04157049
What you commit to
- Study type: Observational
- Planned participants: 5000
- From 20 Jun 2019 to the primary completion date, 20 Jun 2029
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other illness
- Failure to provide informed consent
Other
- Normal healthy individuals (MM)
Who the study is looking for
- Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
- Alpha-1 carriers (PiMZ, PiMS etc.)
Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Save your city in your profile to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Alpha-1 Foundation Coordinator of this site? Confirm its status | Coral Gables | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.