NCT04328350Active, not recruiting
Social Experiences of Adolescents and Young Adults With Cancer
Source: ClinicalTrials.gov · Last updated 23 Apr 2026
Brief summary (registry, in English)
Participants are being asked to take part in this clinical trial, a type of research study, because investigators want to learn more about the social experiences adolescents and young adults who are being treated or have been treated for cancer. Primary Objectives * Describe differences in social experience variables (peer connectedness, perceived social competence, parent versus peer attachment) based on treatment status: on versus off therapy. * In on-therapy patients, describe differences in social experience variables (peer connectedness, perceived social competence, parent versus peer attachment) based on developmental stage: high school versus post-high school. Secondary Objectives * Assess the social support and peer interaction needs of AYA with cancer as a means of determining stakeholder interest and need for psychosocial interventions targeting social experiences. * Using qualitative interviews, explore patient perceptions of the impact of cancer on social experiences among AYA, particularly with regards to changes in friendships as a result of the cancer diagnosis and the role of the hospital in helping or hindering friendship maintenance/development. Exploratory Objectives * Explore differences in social experience by demographic, disease and treatment factors, including: gender, diagnostic category (brain tumor, leukemia/lymphoma, solid tumor), late effects/symptom burden, and treatment (e.g., treatment intensity, serious medical events). * Explore associations between perceived impact of cancer and social experience in AYA. * Explore associations between use of social media and social experience. * Explore associations between social experiences and overall functioning (quality of life, distress, coping). * Explore the possibility of subclasses of AYA by using person-centered analyses to empirically derive profiles of social experience.
- Status (registry)
- Active, not recruiting
- Study type
- Observational
- Enrollment
- 121 (actual)
- First submitted
- 27 Mar 2020
- Start date
- 12 Oct 2020
- Primary completion date
- Dec 2026
- Lead sponsor
- St. Jude Children's Research Hospital
- Diseases
- Childhood cancers
- NCT number
- NCT04328350
What you commit to
- Study type: Observational
- Participants enrolled: 121
- From 12 Oct 2020 to the primary completion date, Dec 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- Surgery only treatment plan.
Other illness
- Diagnosis of a genetic disorder/pre-existing neurodevelopmental condition associated with neurocognitive or social impairment (e.g., autism, Neurofibromatosis Type 1 (NF1), Down syndrome).
Other
- IQ less than 70 as documented in the medical record.
- Inability or unwillingness of research participant or legal - guardian/representative to give written informed consent.
Who the study is looking for
- All Participants
- Age 15 - 22
- Primary oncology diagnosis.
- Reads and speaks English.
- On-Therapy Strata
- 2 - 12 months from diagnosis and receiving cancer-directed therapy.
- Off-Therapy Strata
- 1 - 4 years post-treatment, diagnosed at ≥13 years of age.
- Caregivers Reads and speaks English
- Consent received from adult participant to contact, as it applies
Age in the registry: 15 years to 22 years · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| St. Jude Children's Research Hospital Coordinator of this site? Confirm its status | Memphis | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.