NCT04520698Completed
Utilizing Palliative Leaders In Facilities to Transform Care for Alzheimer's Disease
Source: ClinicalTrials.gov · Last updated 29 Jul 2026
Brief summary (registry, in English)
The purpose of this study is to evaluate a comprehensive model for integrating both primary and specialty Palliative Care for older adults with dementia into nursing facilities. Palliative Care is a supportive care approach that aims to improve the quality of life of patients and their families facing serious or life-threatening illnesses, through the prevention and relief of suffering through the treatment of pain and other problems, using physical, psychosocial and spiritual approaches. Palliative care is specialized medical care for people who are living with a serious illness. This type of care is focused on providing relief from the symptoms and from the stress of the illness. The goal is to improve quality of life for both patient and family. The UPLIFT-AD model will include providing education on primary Palliative Care for residents with dementia to nursing facility staff, training nursing facility staff in providing primary Palliative Care, and providing access to specialty Palliative Care consultations for residents. To help understand the impact of these interventions, this study will also collect information about resident health, the care they receive, and perceptions of their quality of life according to both family members and nursing facility staff.
- Status (registry)
- Completed
- Study type
- Interventional
- Enrollment
- 1322 (actual)
- First submitted
- 17 Aug 2020
- Start date
- 8 Sept 2021
- Primary completion date
- 30 Sept 2025
- Lead sponsor
- Indiana University
- Diseases
- Alzheimer disease
- NCT number
- NCT04520698
What you commit to
- Study type: Interventional
- Participants enrolled: 1322
- From 8 Sept 2021 to the primary completion date, 30 Sept 2025
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- Short-stay resident, defined as paying through Medicare Part A at the enrolled facility and/or receiving respite care
- FAMILY MEMBERS/SURROGATE DECISION MAKERS:
Other
- \-
- NURSING HOME RESIDENTS:
- Non-English-speaking
- NURSING FACILITY STAFF:
- Non-English-speaking
Who the study is looking for
- \-
- NURSING HOME RESIDENTS:
- Long-stay resident in an enrolled nursing home defined as not paying through Medicare Part A at the enrolled facility.
- Has a diagnosis of moderate to severe ADRD, as measured on the Minimum Data Set (MDS)
- Length of stay \>30 days
- FAMILY MEMBERS/SURROGATE DECISION MAKERS:
- Family member and/or surrogate decision maker for an eligible resident in an enrolled nursing home
- English-speaking
- NURSING HOME STAFF:
- Staff, nurse, or nurse assistant in an enrolled nursing facility
- English-speaking
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| American Senior Communities Coordinator of this site? Confirm its status | Indianapolis | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.