NCT04732273Recruiting
The Swiss Childhood Cancer Survivor Study - Follow-up (SCCSS-FollowUp)
Source: ClinicalTrials.gov · Last updated 23 Sept 2025 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
The SCCSS-FollowUp is a national, multicenter cohort study designed to investigate late effects in childhood cancer survivors in a prospective and longitudinal way. The study is embedded in regular follow-up care and inclusion in the study takes place in a step-wise approach. The investigators collect data from clinical examinations, laboratory and functional tests, and questionnaires to learn more about late effects of childhood cancer treatments.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 3000 (estimated)
- First submitted
- 26 Jan 2021
- Start date
- 20 Jun 2022
- Primary completion date
- 1 Jan 2071
- Lead sponsor
- University of Bern
- Diseases
- Childhood cancers
- NCT number
- NCT04732273
What you commit to
- Study type: Observational
- Planned participants: 3000
- From 20 Jun 2022 to the primary completion date, 1 Jan 2071
- 3 sites in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other illness
- Childhood cancer survivors in a palliative or relapsed situation where no follow-up examinations are foreseen.
Who the study is looking for
- Registered in the Childhood Cancer Registry (ChCR) or treated and followed-up in a Swiss pediatric oncology (SPOG) clinic, but not registered in the ChCR because of residency in neighboring countries
- Diagnosed at age 0 - 20 years
- Childhood cancer treatment completed
- All age categories at time of inclusion in the study (children, adolescents, adults)
- Written informed consent
Criteria the registry did not label
- This prospective cohort study is based on the Childhood Cancer Registry (ChCR), a national, population-based cancer registry that includes all children and adolescents in Switzerland who were diagnosed with cancer at age 0-20 years. It includes patients diagnosed with leukemia, lymphoma, central nervous system tumors, and malignant solid tumors or Langerhans cell histiocytosis.
Sex: All · Does not accept healthy volunteers
Sites (3)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| University Childen's Hospital Basel Coordinator of this site? Confirm its status | Basel | Switzerland | Recruiting |
| University Children's Hospital Bern Coordinator of this site? Confirm its status | Bern | Switzerland | Recruiting |
| University Hospital Geneva Coordinator of this site? Confirm its status | Geneva | Switzerland | Recruiting |
Related publications
- Multiple breath washout for pulmonary function assessment in young childhood cancer survivors: a multicenter study.Ann Am Thorac Soc · 2026 · PMID 42050876
This page is information, not medical advice. Discuss any trial with your doctor.