NCT04874519Completed
Registry to Collect Health Information Related to Fibrolamellar Cancer
Fibrolamellar Carcinoma Global Dynamic Registry
Source: ClinicalTrials.gov · Last updated 12 Nov 2025
Brief summary (registry, in English)
The purpose of this study is to collect information about people with fibrolamellar cancer (FLC). This study is a registry of people with FLC around the world. This study will involve collecting information about participants, their medical history and the regular medical care they receive for FLC. The study will not provide treatment for your cancer.
- Status (registry)
- Completed
- Study type
- Observational
- Enrollment
- 12 (actual)
- First submitted
- 3 May 2021
- Start date
- 24 Nov 2021
- Primary completion date
- 10 Nov 2025
- Lead sponsor
- Memorial Sloan Kettering Cancer Center
- NCT number
- NCT04874519
What you commit to
- Study type: Observational
- Participants enrolled: 12
- From 24 Nov 2021 to the primary completion date, 10 Nov 2025
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Participants residing in the European Union (EU).
Who the study is looking for
- Age 13 years or older.
- Personal history of histologically proven fibrolamellar carcinoma (clinical or radiographical suspicion of FLC must be confirmed at MSK or an external hospital)
- Participants must have access to electronic devices that meet the following minimum requirements:
- Ability to connect to the internet
- Capability of running modern internet browers (such as Google Chrome, Internet Explorer, Safari, or Mozilla Firefox).
- Participants must have a google account
Age in the registry: 13 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Memorial Sloan Kettering Cancer Center (All Protocol Activities) Coordinator of this site? Confirm its status | New York | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.