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NCT04959097Recruiting

Retinoblastoma Patient Clinical Database and Tissue Repository

Source: ClinicalTrials.gov · Last updated 22 Apr 2026

Brief summary (registry, in English)

Retinoblastoma (RB) is a primary eye cancer that forms in the back of the eye of infants and toddlers. Traditionally, RB is diagnosed without a biopsy; tumor can only be studied once an eye has been surgically removed. Given this limitation, we use aqueous humor (AH), the clear fluid in the front of the eye to detect specific markers, or information, that comes from the tumor itself.

Status (registry)
Recruiting
Study type
Observational
Enrollment
800 (estimated)
First submitted
24 Jun 2021
Start date
1 Jan 2017
Primary completion date
31 Dec 2028
Lead sponsor
Children's Hospital Los Angeles
NCT number
NCT04959097

What you commit to

  • Study type: Observational
  • Planned participants: 800
  • From 1 Jan 2017 to the primary completion date, 31 Dec 2028
  • 9 sites in 2 countries
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Other

  • Patients referred for second opinions only and not treated at CHLA for any reason.

Who the study is looking for

  • All patients, age 0 days to 18 years, with a diagnosis unilateral or bilateral retinoblastoma (RB) seen at CHLA (Children's Hospital Los Angeles).

Age in the registry: 0 years to 18 years · Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (9)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
The Hospital for Sick Children (Toronto SickKids)
Coordinator of this site? Confirm its status
TorontoCanadaRecruiting
Emory University Children's Healthcare of ATL
Coordinator of this site? Confirm its status
AtlantaUnited StatesRecruiting
Ann & Robert H. Lurie Children's Hospital of Chicago
Coordinator of this site? Confirm its status
ChicagoUnited StatesRecruiting
Children's Hospital Los Angeles
Coordinator of this site? Confirm its status
Los AngelesUnited StatesRecruiting
St. Jude Children's Research Hospital
Coordinator of this site? Confirm its status
MemphisUnited StatesRecruiting
Wills Eye Institute
Coordinator of this site? Confirm its status
PhiladelphiaUnited StatesRecruiting
Phoenix Children s Hospital
Coordinator of this site? Confirm its status
PhoenixUnited StatesRecruiting
Oregon Health & Science University: Casey Eye Institute
Coordinator of this site? Confirm its status
PortlandUnited StatesRecruiting
Seattle Children's Hospital; University of Washington
Coordinator of this site? Confirm its status
SeattleUnited StatesRecruiting

This page is information, not medical advice. Discuss any trial with your doctor.