NCT04959097Recruiting
Retinoblastoma Patient Clinical Database and Tissue Repository
Source: ClinicalTrials.gov · Last updated 22 Apr 2026
Brief summary (registry, in English)
Retinoblastoma (RB) is a primary eye cancer that forms in the back of the eye of infants and toddlers. Traditionally, RB is diagnosed without a biopsy; tumor can only be studied once an eye has been surgically removed. Given this limitation, we use aqueous humor (AH), the clear fluid in the front of the eye to detect specific markers, or information, that comes from the tumor itself.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 800 (estimated)
- First submitted
- 24 Jun 2021
- Start date
- 1 Jan 2017
- Primary completion date
- 31 Dec 2028
- Lead sponsor
- Children's Hospital Los Angeles
- Diseases
- Childhood cancers
- NCT number
- NCT04959097
What you commit to
- Study type: Observational
- Planned participants: 800
- From 1 Jan 2017 to the primary completion date, 31 Dec 2028
- 9 sites in 2 countries
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Patients referred for second opinions only and not treated at CHLA for any reason.
Who the study is looking for
- All patients, age 0 days to 18 years, with a diagnosis unilateral or bilateral retinoblastoma (RB) seen at CHLA (Children's Hospital Los Angeles).
Age in the registry: 0 years to 18 years · Sex: All · Does not accept healthy volunteers
Sites (9)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| The Hospital for Sick Children (Toronto SickKids) Coordinator of this site? Confirm its status | Toronto | Canada | Recruiting |
| Emory University Children's Healthcare of ATL Coordinator of this site? Confirm its status | Atlanta | United States | Recruiting |
| Ann & Robert H. Lurie Children's Hospital of Chicago Coordinator of this site? Confirm its status | Chicago | United States | Recruiting |
| Children's Hospital Los Angeles Coordinator of this site? Confirm its status | Los Angeles | United States | Recruiting |
| St. Jude Children's Research Hospital Coordinator of this site? Confirm its status | Memphis | United States | Recruiting |
| Wills Eye Institute Coordinator of this site? Confirm its status | Philadelphia | United States | Recruiting |
| Phoenix Children s Hospital Coordinator of this site? Confirm its status | Phoenix | United States | Recruiting |
| Oregon Health & Science University: Casey Eye Institute Coordinator of this site? Confirm its status | Portland | United States | Recruiting |
| Seattle Children's Hospital; University of Washington Coordinator of this site? Confirm its status | Seattle | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.