NCT05084209Completed
Preparing Patient-Caregiver Dyads with Parkinson's Disease for Future Decision Making
Preparing Patient-Caregiver Dyads with Parkinson's Disease for End-of-Life Decision Making
Source: ClinicalTrials.gov · Last updated 10 Feb 2025
Brief summary (registry, in English)
Persons with Parkinson's disease and family care partners are often unprepared to make difficult, future medical decisions. Earlier conversations about future medical decisions between persons with Parkinson's disease and family care partners are needed before communication and cognitive difficulties become severe. In this study, the investigators will pilot test a novel dyadic intervention to help persons with Parkinson's disease and family care partners make future medical decisions. The investigators hypothesize the intervention will be feasible and acceptable among persons with Parkinson's disease and family care partners.
- Status (registry)
- Completed
- Study type
- Interventional
- Enrollment
- 33 (actual)
- First submitted
- 25 Sept 2021
- Start date
- 26 Jun 2024
- Primary completion date
- 27 Aug 2024
- Lead sponsor
- Purdue University
- Diseases
- Parkinson disease
- NCT number
- NCT05084209
What you commit to
- Study type: Interventional
- Participants enrolled: 33
- From 26 Jun 2024 to the primary completion date, 27 Aug 2024
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Cannot see well enough to see words on a newspaper even with corrective lenses
- Used the intervention resources before
- If cognition is questionable and cannot pass consent understanding questions
Criteria the registry did not label
- Person with Parkinson's Disease Inclusion Criteria:
- Self-report a clinical diagnosis of Parkinson Disease
- Does not have a diagnosis of dementia
- Speak and read English
- Have access to a reliable phone or internet connection
- Have access to an online connection through a smartphone, tablet, or computer device
- Be comfortable navigating websites or have someone available to assist
- Agree to be audio recorded during intervention
- Care Partner Inclusion Criteria:
- Self-identify as the family member who will likely make medical decisions for the person with Parkinson Disease in the future OR who is the legally appointed health care representative
- Self-report not having a diagnosis of dementia
- Speak and read English
- Have access to a reliable phone or internet connection
- Have access to an online connection through a smartphone, tablet, or computer device
- Be comfortable navigating websites or have someone available to assist
- Agree to be audio recorded during intervention
Age in the registry: 18 years to - · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Purdue University Coordinator of this site? Confirm its status | West Lafayette | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.