NCT05222386Active, not recruiting
Community Outreach for Palliative Engagement -- Parkinson Disease
Building Online Community to Improve Patient and Caregiver Outcomes in Parkinson Disease, Lewy Body Dementia and Related Disorders
Source: ClinicalTrials.gov · Last updated 6 Mar 2026
Brief summary (registry, in English)
The purpose of this study is to learn more about the effectiveness of palliative care training for community physicians and telemedicine support services for patients and carepartners with Parkinson's disease and Lewy Body Dementia (LBD) or related conditions and their care partners. Palliative care is a treatment approach focused on improving quality of life by relieving suffering in the areas of physical symptoms such as pain, psychiatric symptoms such as depression, psychosocial issues and spiritual needs. Telemedicine is the use of technology that allows participants to interact with a health care provider without being physically near the provider.
- Status (registry)
- Active, not recruiting
- Study type
- Interventional
- Enrollment
- 632 (actual)
- First submitted
- 3 Jan 2022
- Start date
- 26 Apr 2022
- Primary completion date
- 1 Sept 2026
- Lead sponsor
- University of Rochester
- Diseases
- Lewy body dementia, Parkinson disease
- NCT number
- NCT05222386
What you commit to
- Study type: Interventional
- Participants enrolled: 632
- From 26 Apr 2022 to the primary completion date, 1 Sept 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- Already receiving palliative care or hospice services.
Other illness
- Presence of additional medical illnesses which requires palliative services (e.g. metastatic cancer)
Other
- PATIENT EXCLUSION CRITERIA:
- Potential patient subjects who are unable or unwilling to commit to study procedures
Who the study is looking for
- PATIENT INCLUSION CRITERIA:
- Over age 40 years and diagnosed with PD or other causes of parkinsonism, such as progressive supranuclear palsy, multiple system atrophy and Lewy Body Dementia by their community neurologist.
Age in the registry: 40 years to - · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| University of Rochester Medical Center for Health + Technology Coordinator of this site? Confirm its status | Rochester | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.