NCT05497518Recruiting
The KidneyCARE (Community Access to Research Equity) Study
The KidneyCARE (Community Access to Research Equity) Study: A National Registry for People With All Stages of Kidney Disease (Formerly National Kidney Foundation Patient Network)
Source: ClinicalTrials.gov · Last updated 26 Oct 2026
Brief summary (registry, in English)
For chronic kidney disease (CKD), there is a lack of unique and powerful platform for patient engagement, research studies and public health advocacy work. The National kidney Foundation (NKF) launched the first nationwide registry for people at all stages and types of CKD, including people on dialysis and kidney transplant recipients, called the KidneyCARE Study (kidneycarestudy.org). The KidneyCARE Study is a non-interventional research study which means participants will not have to take medications or do any additional tests to participate. They are simply asked to share some personal and health information, and their experiences with their disease through a secure portal. The Study also collaborates with health systems to obtain additional electronic health records (EHR) data. This unique combination of data collected will address the gap of individualized educational resources and will enhance clinical research, clinical care, and health policy decisions to be centered on the patient. The Study is all online and can be accessed any time of day at kidneycarestudy.org. Participation is voluntary and free.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 50000 (estimated)
- First submitted
- 9 Aug 2022
- Start date
- 25 Feb 2021
- Primary completion date
- 24 Feb 2070
- Lead sponsor
- Tufts Medical Center
- Diseases
- Chronic kidney disease
- NCT number
- NCT05497518
What you commit to
- Study type: Observational
- Planned participants: 50000
- From 25 Feb 2021 to the primary completion date, 24 Feb 2070
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Age
- Age below 18 years
Other
- Patient not diagnosed with CKD
- Not willing to participate in the Study as well as unwilling to complete the informed consent form
Who the study is looking for
- Patients with any stage of CKD, including kidney transplant recipients and patients on dialysis.
- Age 18 years and above.
- Willing to participate in the Study and complete the informed consent form and assent form (where applicable).
- Able to participate in this Study, which initially will be in English and then eventually expand to other languages.
- Patients affiliated with Geisinger Health System must have given their consent to Geisinger Health System IRB to be contacted for research projects.
Age in the registry: 18 years to 120 years · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Geisinger Clinic Coordinator of this site? Confirm its status | Danville | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.