NCT05697874Recruiting
International Rare Brain Tumor Registry
Source: ClinicalTrials.gov · Last updated 7 Aug 2026
Brief summary (registry, in English)
The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 5800 (estimated)
- First submitted
- 23 Jan 2023
- Start date
- 1 Jan 2023
- Primary completion date
- Dec 2033
- Lead sponsor
- Children's National Research Institute
- Diseases
- Childhood cancers, Sarcoma
- NCT number
- NCT05697874
What you commit to
- Study type: Observational
- Planned participants: 5800
- From 1 Jan 2023 to the primary completion date, Dec 2033
- 13 sites in 4 countries
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Age
- The patient is older than 46 years of age at diagnosis.
Other
- The patient has an extra-CNS primary tumor.
- The patient or family is not willing to participate or does not sign informed consent.
Who the study is looking for
- Patients with a known or suspected CNS Sarcoma.
- Patients with a known or suspected BCOR-altered brain tumor
- Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor
- Patients with known or suspected histologically ambiguous/unclassifiable brain tumor
- Patients with a known or suspected rare brain tumor.
- Signed informed consent by patient/ parent or guardian (assent where applicable) to participate in the study.
Age in the registry: - to 45 years · Sex: All · Does not accept healthy volunteers
Sites (13)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| TUCCA - Santa Marcelina Coordinator of this site? Confirm its status | São Paulo | Brazil | Recruiting |
| Clinica del Country Coordinator of this site? Confirm its status | Bogota | Colombia | Recruiting |
| HOMI - Fundación Hospital de la Misericordia Coordinator of this site? Confirm its status | Bogotá | Colombia | Recruiting |
| Rambam Health Care Campus Coordinator of this site? Confirm its status | Haifa | Israel | Recruiting |
| Schneider Children's Medical Center- CLALIT Health Services Coordinator of this site? Confirm its status | Petah Tikva | Israel | Recruiting |
| Dana-Dwek Children's Hospital- Tel Aviv Medical Center Coordinator of this site? Confirm its status | Tel Aviv | Israel | Recruiting |
| The Sheba Medical Center Coordinator of this site? Confirm its status | Tel HaShomer | Israel | Recruiting |
| Akron Children's Hospital Coordinator of this site? Confirm its status | Akron | United States | Recruiting |
| Ann & Robert H. Lurie Children's Hospital of Chicago Coordinator of this site? Confirm its status | Chicago | United States | Recruiting |
| Cincinnati Children's Hospital Medical Center Coordinator of this site? Confirm its status | Cincinnati | United States | Recruiting |
| Children's Hospital Los Angeles Coordinator of this site? Confirm its status | Los Angeles | United States | Recruiting |
| University of California San Francisco Coordinator of this site? Confirm its status | San Francisco | United States | Recruiting |
| Children's National Hospital Coordinator of this site? Confirm its status | Washington D.C. | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.