NCT05712447Completed
Duchenne Muscular Dystrophy Video Assessment Registry
Source: ClinicalTrials.gov · Last updated 10 Mar 2026
Brief summary (registry, in English)
ARISE is a prospective and longitudinal clinical study of individuals with Duchenne Muscular Dystrophy (DMD) aimed at creating a database of functional motor abilities in this population to support validation efforts of the Duchenne Video Assessment (DVA).
- Status (registry)
- Completed
- Study type
- Observational
- Enrollment
- 150 (actual)
- First submitted
- 30 Nov 2022
- Start date
- 1 Sept 2022
- Primary completion date
- 11 Jan 2026
- Lead sponsor
- The Emmes Company, LLC
- Diseases
- Duchenne muscular dystrophy
- NCT number
- NCT05712447
What you commit to
- Study type: Observational
- Participants enrolled: 150
- From 1 Sept 2022 to the primary completion date, 11 Jan 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Participants will be excluded if they are unable to use a hand to hold a pen, pick up pennies or drive a powerchair.
Who the study is looking for
- At least 2 years of age at time of consent
- Written consent (English only) by adult participant or parent/legal guardian of minor participant
- Written assent (English only) if minor participant is at least 7 years of age
- Documentation provided for the participant's diagnosis of DMD (i.e., genetic report, clinic note)
Age in the registry: 2 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Emmes Coordinator of this site? Confirm its status | Rockville | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.