Fact CheckerSign in

NCT05775224Enrolling by invitation

ASH Research Collaborative Data Hub

ASH Research Collaborative Data Hub Protocol: A Multi-Center Data Hub of Individuals Living With Hematologic Disease

Source: ClinicalTrials.gov · Last updated 17 Jun 2024 · Not updated for over 12 months - ask the site whether it is still open

Brief summary (registry, in English)

Benign and malignant hematologic diseases are relatively rare conditions within the spectrum of medical practice in any one site of care. Nonetheless, recent research in hematologic conditions from basic, translational, clinical and population perspectives offer the possibility of improving the way that these diseases are treated, and the outcomes experienced by patients. A repository that aggregates and validates this data across institutions and other practice settings is needed in order to identify variation in care, new findings, and further research.

Status (registry)
Enrolling by invitation
Study type
Observational
Enrollment
100000 (estimated)
First submitted
13 Jan 2023
Start date
29 Apr 2020
Primary completion date
29 Apr 2099
Lead sponsor
ASH Research Collaborative
NCT number
NCT05775224

What you commit to

  • Study type: Observational
  • Planned participants: 100000
  • From 29 Apr 2020 to the primary completion date, 29 Apr 2099
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Criteria the registry did not label

  • To be included in the Data Hub, patients must have documented sickle cell disease and/or active multiple myeloma since 2015.

Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
ASH Research Collaborative
Coordinator of this site? Confirm its status
Washington D.C.United StatesUnknown status

This page is information, not medical advice. Discuss any trial with your doctor.