NCT05775224Enrolling by invitation
ASH Research Collaborative Data Hub
ASH Research Collaborative Data Hub Protocol: A Multi-Center Data Hub of Individuals Living With Hematologic Disease
Source: ClinicalTrials.gov · Last updated 17 Jun 2024 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
Benign and malignant hematologic diseases are relatively rare conditions within the spectrum of medical practice in any one site of care. Nonetheless, recent research in hematologic conditions from basic, translational, clinical and population perspectives offer the possibility of improving the way that these diseases are treated, and the outcomes experienced by patients. A repository that aggregates and validates this data across institutions and other practice settings is needed in order to identify variation in care, new findings, and further research.
- Status (registry)
- Enrolling by invitation
- Study type
- Observational
- Enrollment
- 100000 (estimated)
- First submitted
- 13 Jan 2023
- Start date
- 29 Apr 2020
- Primary completion date
- 29 Apr 2099
- Lead sponsor
- ASH Research Collaborative
- NCT number
- NCT05775224
What you commit to
- Study type: Observational
- Planned participants: 100000
- From 29 Apr 2020 to the primary completion date, 29 Apr 2099
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Criteria the registry did not label
- To be included in the Data Hub, patients must have documented sickle cell disease and/or active multiple myeloma since 2015.
Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| ASH Research Collaborative Coordinator of this site? Confirm its status | Washington D.C. | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.