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NCT05910307Recruiting

Synovial Sarcoma Registry / Biospecimen Repository

Synovial Sarcoma Registry and Biospecimen Repository

Source: ClinicalTrials.gov · Last updated 9 Jun 2026

Brief summary (registry, in English)

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Status (registry)
Recruiting
Study type
Observational
Enrollment
1000 (estimated)
First submitted
1 Jun 2023
Start date
12 Jun 2023
Primary completion date
30 Jun 2028
Lead sponsor
Children's Hospital of Philadelphia
NCT number
NCT05910307

What you commit to

  • Study type: Observational
  • Planned participants: 1000
  • From 12 Jun 2023 to the primary completion date, 30 Jun 2028
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Other

  • Individuals with sarcomas that do not fit the definition of those considered for this registry
  • Individuals who are unwilling to participate
  • Individuals who are unwilling or unable to provide written consent

Who the study is looking for

  • Males or females of any age
  • Reported diagnosis of synovial sarcoma
  • Informed consent from subject (aged ≥18 years) or parent/guardian

Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
Children's Hospital of Philadelphia
Coordinator of this site? Confirm its status
PhiladelphiaUnited StatesRecruiting

This page is information, not medical advice. Discuss any trial with your doctor.