NCT06035939Recruiting
SMYLS Multi-site Trial
Self-Management for Youth Living With Sickle Cell Disease: SMYLS Multi-site Trial
Source: ClinicalTrials.gov · Last updated 8 Dec 2025
Brief summary (registry, in English)
The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.
- Status (registry)
- Recruiting
- Study type
- Interventional
- Enrollment
- 272 (estimated)
- First submitted
- 29 Aug 2023
- Start date
- 4 Apr 2024
- Primary completion date
- 31 Jul 2027
- Lead sponsor
- Medical University of South Carolina
- Diseases
- Sickle cell disease
- NCT number
- NCT06035939
What you commit to
- Study type: Interventional
- Planned participants: 272
- From 4 Apr 2024 to the primary completion date, 31 Jul 2027
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other illness
- Parent/caregiver or provider report of neurocognitive impairment that precludes ability to use intervention and participate in study
Other
- Plans to relocate outside of study site area in the next 12 months
- Plans to transition to adult care in 12 months or less
- non-English speaking
Who the study is looking for
- documentation in the electronic health record of any type of SCD
- owns mobile device compatible with the intervention
- access to the internet
Age in the registry: 14 years to 21 years · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Medical University of South Carolina Coordinator of this site? Confirm its status | Charleston | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.