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NCT06075719Active, not recruiting

Stroke Research Initiative to Advance Equity

Source: ClinicalTrials.gov · Last updated 2 Apr 2026

Brief summary (registry, in English)

1. Assess patient-centered outcomes (PCOs) amongst stroke survivors and their caregivers in the MedStar Health system longitudinally. i. Utilize a community advisory board (CAB) of stroke survivors and their caregivers to identify the patient-centered outcome(s) that the CAB determine to be most important and valuable to assess based on their lived experiences. ii. Collect the chosen PCOs at multiple time points using an electronic survey tool (e.g. Qualtrics, Tonic or RedCap) 2. Evaluate the impact of social determinants of health (SDoH) and experiences of discrimination on the chosen PCOs. 3. Examine whether there are differences in long-term PCOs amongst stroke survivors from different racial and ethnic groups. 2.2 Hypothesis: The investigator hypothesizes that stroke survivors that come from historically marginalized populations, specifically African American and Latinos, will have lower patient-centered outcome scores overall as compared to their Caucasian counterparts. In addition, the investigator hypothesizes that the difference PCO scores between Caucasian and African American and Latino populations will be due in part to experienced discrimination and not SDoH alone. .

Status (registry)
Active, not recruiting
Study type
Observational
Enrollment
1000 (estimated)
First submitted
4 Oct 2023
Start date
10 Jan 2024
Primary completion date
15 Mar 2026
Lead sponsor
Medstar Health Research Institute
Diseases
Stroke
NCT number
NCT06075719

What you commit to

  • Study type: Observational
  • Planned participants: 1000
  • From 10 Jan 2024 to the primary completion date, 15 Mar 2026
  • 2 sites in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Other illness

  • Transient Ischemic Attack (TIA) or Subarachnoid Hemorrhage (SAH)

Other

  • Unable to complete required forms
  • Life expectancy less than 6 months
    • Caregiver
  • Unable to complete study survey forms
  • Life expectancy less than 6 months

Who the study is looking for

  • ≥ 18 years old
  • Acute Ischemic Stroke (AIS) or Intracerebral Hemorrhage (ICH) patients that have been cared for in the MedStar Healthcare system
  • AIS of ICH in the last six weeks
  • Ability to communicate in English, Spanish, Amharic, Mandarin Chinese or French (most common languages in the greater Washington, DC area)
  • Age ≥ 18
  • Self-identify as primary caregiver for the stroke survivor
  • Ability to communicate in English, Spanish, Amharic, Mandarin Chinese, French

Criteria the registry did not label

  • Stroke Survivor:

Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (2)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
MedStar National Rehabilitation Hopsital
Coordinator of this site? Confirm its status
Washington D.C.United StatesUnknown status
MedStar Washington Hospital Center
Coordinator of this site? Confirm its status
Washington D.C.United StatesUnknown status

This page is information, not medical advice. Discuss any trial with your doctor.