NCT06164470Completed
Impact of Support Groups for Patients With Non-Cystic Fibrosis Bronchiectasis
Impact of Support Groups for Patients With Non-Cystic Fibrosis Bronchiectasis on Quality of Life and Exacerbations
Source: ClinicalTrials.gov · Last updated 6 Apr 2025
Brief summary (registry, in English)
BronchConnect is a prospective trial to investigate the impact of support groups on health care related quality of life in those with noncystic fibrosis bronchiectasis (NCFBE). It has been well demonstrated that participation in patient support groups improves quality of life in those who suffer from interstitial lung disease and chronic obstructive pulmonary disease, but the impact is largely unknown for those who live with NCFBE, a chronic lung disease with rising prevalence with no targeted FDA-approved therapy. NCFBE causes chronic cough, dyspnea, recurrent infections, and leads to anxiety and uncertainty. This study seeks to evaluate the impact of a virtual patient support group for patients with NCFBE through questionnaires to assess change of quality of life and anxiety, and exacerbation rates through clinical assessment.
- Status (registry)
- Completed
- Study type
- Interventional
- Enrollment
- 42 (actual)
- First submitted
- 1 Dec 2023
- Start date
- 1 Apr 2024
- Primary completion date
- 2 Apr 2025
- Lead sponsor
- University of California, San Francisco
- Diseases
- Cystic fibrosis
- NCT number
- NCT06164470
What you commit to
- Study type: Interventional
- Participants enrolled: 42
- From 1 Apr 2024 to the primary completion date, 2 Apr 2025
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- Solid organ transplant recipient
Age
- Age \< 18 years old
Other
- Cystic fibrosis
- Traction bronchiectasis in the context of pulmonary fibrosis
- Ability to provide informed consent
- Due to constraints of this pilot study, inability to engage in a full conversation in English
Who the study is looking for
- Diagnosis of bronchiectasis on computed tomography (CT) chest scan
- Bronchiectasis is the primary respiratory disease as determined by a clinician
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| University of California San Francisco Coordinator of this site? Confirm its status | San Francisco | United States | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.