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NCT06205953Recruiting

A EUropean REgistry and Sample Sharing networK to Promote the Diagnosis and Management of Light Chain Amyloidosis (EUREKA)

Bonding Molecular Genotyping and Phenotyping to Outcome Measures in AL Amyloidosis: A EUropean REgistry and Sample Sharing networK to Promote the Diagnosis and Management of Light Chain Amyloidosis (EUREKA)

Source: ClinicalTrials.gov · Last updated 16 Apr 2026

Brief summary (registry, in English)

A prospective patients' registry collecting all new cases of AL amyloidosis evaluated at referral Centers from across Europe and a sample sharing network will be created to study mechanisms of the disease through the use of advanced molecular technologies and big data analysis tools.

Status (registry)
Recruiting
Study type
Observational
Enrollment
400 (estimated)
First submitted
4 Jan 2024
Start date
1 Jan 2024
Primary completion date
1 Jun 2026
Lead sponsor
Fondazione IRCCS Policlinico San Matteo di Pavia
Diseases
Amyloidosis
NCT number
NCT06205953

What you commit to

  • Study type: Observational
  • Planned participants: 400
  • From 1 Jan 2024 to the primary completion date, 1 Jun 2026
  • 6 sites in 6 countries
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Prior treatment

  • previous treatment for AL amyloidosis.

Other

  • non-AL amyloidosis;

Who the study is looking for

  • diagnosis of systemic AL amyloidosis;
  • treatment-naïve;
  • age ≥18 years;
  • ability to understand and willingness to sign an informed consent;
  • planned follow-up at participating center.

Age in the registry: 18 years to 99 years · Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (6)

Sites in registry order. Save your city in your profile to sort them by distance.

SiteCityCountrySite status
University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics
Coordinator of this site? Confirm its status
MuttenzSwitzerlandActive, not recruiting
Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
Coordinator of this site? Confirm its status
HeidelbergGermanyRecruiting
Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
Coordinator of this site? Confirm its status
PamplonaSpainRecruiting
Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
Coordinator of this site? Confirm its status
PaviaItalyRecruiting
UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
Coordinator of this site? Confirm its status
UtrechtNetherlandsRecruiting
Universidad de la Republica Hospital de Clinicas "Dr Manuel Quintela"
Coordinator of this site? Confirm its status
MontevideoUruguayRecruiting

This page is information, not medical advice. Discuss any trial with your doctor.