Transforming Care for Individuals With Childhood-onset Systemic Lupus Erythematosus

Other illness

• 1\) other chronic medical conditions (e.g., juvenile arthritis)
• 2\) a documented developmental delay, severe cognitive impairment, or thought disorder
• 3\) an untreated major psychiatric illness (e.g., bipolar disorder, psychosis, severe depression (PHQ9 score ≥21, BDI/CDI II \> 90) or active suicidal ideation (SI), based on the Pediatric Health Questionnaire (PHQ-9) items plus clinical interview; see Measures section)

• 1\) be diagnosed with cSLE, meeting the revised American College of Rheumatology Classification Criteria for SLE by age 18 years
• 2\) be between the ages of 12 and 22 years
• 3\) in recognition of the heterogeneity of cSLE symptoms, have elevations in fatigue (i.e., T scores ≥60; or at least moderate symptoms, on the PROMIS measure) OR depressive symptoms (≥5 on the PHQ-9, T Score ≥ 60 on the BDI or CDI II ), OR pain (i.e., average pain ≥3 out of 10 on the Pain VAS)
• 4\) have English language proficiency (their primary caregiver can have English or Spanish language proficiency for the child to enroll)
• 5\) those under age 18 years (US), or 16 years (Canada) must have a consenting caregiver