NCT06778772Recruiting
Transition From Pediatric to Adult Epilepsy Care
Transition to Adult Care in Epilepsy
Source: ClinicalTrials.gov · Last updated 16 Jan 2025 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
The goal of this observational study is to assess the preparation of the caregiver and the patient for the transition, by comparing the results of the Transition Readiness Assessment (TRAQ) questionnaire at the time of the last pediatric neuropsychiatric visit, which is then repeated at the first adult epilepsy neurology visit. The assessments will be conducted at the last evaluation at the pediatric epilepsy service and repeated at the first visit to the adult epilepsy service.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 90 (estimated)
- First submitted
- 8 Jan 2025
- Start date
- 1 Jun 2023
- Primary completion date
- 1 May 2025
- Lead sponsor
- IRCCS National Neurological Institute "C. Mondino" Foundation
- Diseases
- Epilepsy
- NCT number
- NCT06778772
What you commit to
- Study type: Observational
- Planned participants: 90
- From 1 Jun 2023 to the primary completion date, 1 May 2025
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Criteria the registry did not label
- \*\*Inclusion Criteria:\*\*
- Patients aged 17 or 18 years.
- Diagnosed with focal or generalized epilepsy, regardless of etiology and neuropsychological, neuropsychiatric, or internal comorbidities.
- Those for whom continued epileptology follow-up is required according to standard care guidelines.
- \*\*Exclusion Criteria:\*\*
- Patients undergoing EEG only for the detection of EEG abnormalities without a diagnosis of epilepsy.
- Patients for whom the last neuropsychiatric evaluation does not recommend continued epileptology follow-up (patients considered "cured" from epilepsy according to ILAE guidelines).
Age in the registry: 17 years to 18 years · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Child Neuropsichiatry Coordinator of this site? Confirm its status | Pavia | Italy | Recruiting |
Related publications
- Epi-STEP: A multidisciplinary transition model for patients with epilepsy.MethodsX · 2026 · PMID 42165072
This page is information, not medical advice. Discuss any trial with your doctor.