NCT06820515Recruiting
ATHNdataset Registry
American Thrombosis and Hemostasis Network ATHNdataset Registry
Source: ClinicalTrials.gov · Last updated 21 Apr 2026
Brief summary (registry, in English)
The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems. Doctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 200000 (estimated)
- First submitted
- 6 Feb 2025
- Start date
- 25 Oct 2024
- Primary completion date
- 25 Oct 2054
- Lead sponsor
- American Thrombosis and Hemostasis Network
- Diseases
- Haemophilia, Sickle cell disease
- NCT number
- NCT06820515
What you commit to
- Study type: Observational
- Planned participants: 200000
- From 25 Oct 2024 to the primary completion date, 25 Oct 2054
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Any participant unable to provide consent or assent to participate in the ATHNdataset
Who the study is looking for
- Any participant evaluated for or the potential to have a blood disorder who has an encounter with an ATHN Affiliate.
- Participants of any age.
- Participant is able to provide consent or assent; a Legally Authorized Representative (LAR) may provide consent on a participant's behalf if a participant is unable to provide self-consent
Sex: All
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| American Thrombosis and Hemostasis Network Coordinator of this site? Confirm its status | Hickory | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.