NCT06866652Recruiting
Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"
Source: ClinicalTrials.gov · Last updated 8 May 2026
Brief summary (registry, in English)
Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 50 (estimated)
- First submitted
- 20 Feb 2025
- Start date
- 8 Apr 2026
- Primary completion date
- Jun 2028
- Lead sponsor
- Institut de Myologie, France
- Diseases
- Myasthenia gravis
- NCT number
- NCT06866652
What you commit to
- Study type: Observational
- Planned participants: 50
- From 8 Apr 2026 to the primary completion date, Jun 2028
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Prior treatment
- Current MG crisis or exacerbation (necessitating increase in MG medication \&/or hospital admission)
Other illness
- Known respiratory disorder (other than MG)
- Recent (within past 4 weeks) respiratory infection
- Severe cognitive impairment/guardianship
Other
- Known Pregnancy
- No dyspnea - score 0 or 3 on the respiration item on the MG- activities of daily living score
Who the study is looking for
- Age ≥18
- Confirmed diagnosis of autoimmune MG
- Shortness of breath in daily life: score 1 or 2 on the respiration item on the MG- activities of daily living score
- Signed consent form
- Affiliated to or beneficiary of a social security scheme
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Institute of Myology Coordinator of this site? Confirm its status | Paris | France | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.