NCT06887283Recruiting
Essen Amyloidosis Registry
Source: ClinicalTrials.gov · Last updated 21 Aug 2025 · Not updated for over 12 months - ask the site whether it is still open
Brief summary (registry, in English)
The Essen Amyloidosis Registry (EAR) is a prospective, observational registry designed to collect comprehensive clinical data on patients diagnosed with systemic amyloidosis. The registry aims to improve the understanding of disease progression, diagnostic pathways, and treatment outcomes. The registry is hosted at the University Hospital Essen and follows patients longitudinally. Inclusion is open to all patients with suspected or confirmed amyloidosis who provide informed consent.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 400 (estimated)
- First submitted
- 14 Mar 2025
- Start date
- 8 May 2024
- Primary completion date
- 1 Jan 2029
- Lead sponsor
- University Hospital, Essen
- Diseases
- Amyloidosis
- NCT number
- NCT06887283
What you commit to
- Study type: Observational
- Planned participants: 400
- From 8 May 2024 to the primary completion date, 1 Jan 2029
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Age
- Age \< 18 years
Other
- Lack of written informed consent
Who the study is looking for
- Suspected or confirmed amyloidosis (any)
- Written informed consent to participate in the study
- Age 18 years and above
Age in the registry: 18 years to - · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| University Hospital Essen Coordinator of this site? Confirm its status | Essen | Germany | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.