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NCT06887283Recruiting

Essen Amyloidosis Registry

Source: ClinicalTrials.gov · Last updated 21 Aug 2025 · Not updated for over 12 months - ask the site whether it is still open

Brief summary (registry, in English)

The Essen Amyloidosis Registry (EAR) is a prospective, observational registry designed to collect comprehensive clinical data on patients diagnosed with systemic amyloidosis. The registry aims to improve the understanding of disease progression, diagnostic pathways, and treatment outcomes. The registry is hosted at the University Hospital Essen and follows patients longitudinally. Inclusion is open to all patients with suspected or confirmed amyloidosis who provide informed consent.

Status (registry)
Recruiting
Study type
Observational
Enrollment
400 (estimated)
First submitted
14 Mar 2025
Start date
8 May 2024
Primary completion date
1 Jan 2029
Lead sponsor
University Hospital, Essen
Diseases
Amyloidosis
NCT number
NCT06887283

What you commit to

  • Study type: Observational
  • Planned participants: 400
  • From 8 May 2024 to the primary completion date, 1 Jan 2029
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Age

  • Age \< 18 years

Other

  • Lack of written informed consent

Who the study is looking for

  • Suspected or confirmed amyloidosis (any)
  • Written informed consent to participate in the study
  • Age 18 years and above

Age in the registry: 18 years to - · Sex: All · Accepts healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
University Hospital Essen
Coordinator of this site? Confirm its status
EssenGermanyRecruiting

This page is information, not medical advice. Discuss any trial with your doctor.