NCT06998355Withdrawn
BE.Amycon Registry UZ Leuven
BE.Amycon Amyloidosis Data Registry UZ Leuven
Source: ClinicalTrials.gov · Last updated 25 Sept 2026
Brief summary (registry, in English)
The goal of this observational study is to establish database with (limited) personal and health data of patients diagnosed with amyloidosis (any subtype) in order to get better insights on the disease presentation, disease evolution pattern, treatment plans and responses and survival.
- Status (registry)
- Withdrawn
- Study type
- Observational
- Enrollment
- 0 (actual)
- First submitted
- 12 May 2025
- Start date
- 1 Sept 2025
- Primary completion date
- 31 Dec 2027
- Lead sponsor
- Universitaire Ziekenhuizen KU Leuven
- Diseases
- Amyloidosis
- NCT number
- NCT06998355
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Not able to provide informed consent
- Not willing to sign informed consent
Who the study is looking for
- Age 18 years or older
- Provide consent and sign informed consent form
- Confirmed diagnosis of amyloidosis (any subtype), systemic and/or localised
- Newly diagnosed or in follow-up during the study time-frame (1 JUN 2025 until 31 DEC 2027)
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Save your city in your profile to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| UZ Leuven Gasthuisberg Coordinator of this site? Confirm its status | Leuven | Belgium | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.