NCT07223489Recruiting
Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System
Understanding the Diagnostic Pathway and Treatment Experience of Patients With Spinal Muscular Atrophy (SMA)
Source: ClinicalTrials.gov · Last updated 16 Jan 2026
Brief summary (registry, in English)
Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.
- Status (registry)
- Recruiting
- Study type
- Observational
- Enrollment
- 200 (estimated)
- First submitted
- 29 Oct 2025
- Start date
- Oct 2025
- Primary completion date
- Jun 2026
- Lead sponsor
- Medstar Health Research Institute
- Diseases
- Spinal muscular atrophy
- NCT number
- NCT07223489
What you commit to
- Study type: Observational
- Planned participants: 200
- From Oct 2025 to the primary completion date, Jun 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Deceased
Who the study is looking for
- SMA diagnosis, age greater than or equal to 18 years
Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| MedStar Health Research Institute Coordinator of this site? Confirm its status | Washinton | United States | Recruiting |
This page is information, not medical advice. Discuss any trial with your doctor.