NCT07356063Active, not recruiting
Self-Efficacy Enhancement Among Online Support Group of Primary Caregivers of Children With Neuro Muscular Dystrophy
A Pre-Post Single-Arm Pilot Trial of a Digital Multicomponent Intervention for Self-Efficacy Enhancement Among Online Support Groups of Primary Caregivers of Children With Neuro-Muscular Disorders: SEE-NMD Protocol
Source: ClinicalTrials.gov · Last updated 9 Oct 2026
Brief summary (registry, in English)
The goal of this clinical trial is to learn if providing a multicomponent intervention improves the confidence of caregivers of children with DMD or SMA. The main question it aims to answer is: Does this intervention increase their self-efficacy scores over 8 weeks time? Researchers will compare scores at baseline (pre intervention) and after 8 weeks (post intervention)
- Status (registry)
- Active, not recruiting
- Study type
- Interventional
- Enrollment
- 34 (estimated)
- First submitted
- 11 Jan 2026
- Start date
- 15 Aug 2026
- Primary completion date
- 20 Nov 2026
- Lead sponsor
- Aga Khan University
- NCT number
- NCT07356063
What you commit to
- Study type: Interventional
- Planned participants: 34
- From 15 Aug 2026 to the primary completion date, 20 Nov 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Caregivers who are currently participating in another support group intervention.
- Caregivers who are unable to understand the language of communication (Urdu)
Who the study is looking for
- Primary caregiver of a child diagnosed with SMA or DMD.
- Enrolled in the Treat-NMD registry- Pakistan.
- Access to a smart phone with internet connectivity.
Age in the registry: - to 18 years · Sex: All · Accepts healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Aga Khan University Coordinator of this site? Confirm its status | Karachi | Pakistan | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.