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NCT07443449Active, not recruiting

International SBMA Project (KDA)

Connecting SBMA National Registries/Databases: a Retrospective Study

Source: ClinicalTrials.gov · Last updated 2 Mar 2026

Brief summary (registry, in English)

This project aims at: connecting the existing registries and databases across different countries by comparing the information collected, the administered scales, the biochemical investigations performed; performing a common analysis of fully anonymized data collected in the existing registries and databases by researchers adhering to the study to obtain cross-sectional and longitudinal data. Centres from the following countries have accepted the invitation to join Italy in this project: UK, US, Japan, France, Germany, Korea, Finland, Greece, Canada, Turkey.

Status (registry)
Active, not recruiting
Study type
Observational
Enrollment
700 (actual)
First submitted
6 Feb 2026
Start date
29 Jul 2024
Primary completion date
31 Dec 2026
Lead sponsor
Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta
NCT number
NCT07443449

What you commit to

  • Study type: Observational
  • Participants enrolled: 700
  • From 29 Jul 2024 to the primary completion date, 31 Dec 2026
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Other

  • na

Who the study is looking for

  • Individuals affected by SBMA for whom clinical data have been historically collected by the referral centres

Age in the registry: 18 years to - · Sex: Male · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
Fondazione IRCCS Istituto Neurologico Carlo Besta
Coordinator of this site? Confirm its status
MilanItalyUnknown status

This page is information, not medical advice. Discuss any trial with your doctor.