NCT07443449Active, not recruiting
International SBMA Project (KDA)
Connecting SBMA National Registries/Databases: a Retrospective Study
Source: ClinicalTrials.gov · Last updated 2 Mar 2026
Brief summary (registry, in English)
This project aims at: connecting the existing registries and databases across different countries by comparing the information collected, the administered scales, the biochemical investigations performed; performing a common analysis of fully anonymized data collected in the existing registries and databases by researchers adhering to the study to obtain cross-sectional and longitudinal data. Centres from the following countries have accepted the invitation to join Italy in this project: UK, US, Japan, France, Germany, Korea, Finland, Greece, Canada, Turkey.
- Status (registry)
- Active, not recruiting
- Study type
- Observational
- Enrollment
- 700 (actual)
- First submitted
- 6 Feb 2026
- Start date
- 29 Jul 2024
- Primary completion date
- 31 Dec 2026
- Lead sponsor
- Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta
- NCT number
- NCT07443449
What you commit to
- Study type: Observational
- Participants enrolled: 700
- From 29 Jul 2024 to the primary completion date, 31 Dec 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- na
Who the study is looking for
- Individuals affected by SBMA for whom clinical data have been historically collected by the referral centres
Age in the registry: 18 years to - · Sex: Male · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| Fondazione IRCCS Istituto Neurologico Carlo Besta Coordinator of this site? Confirm its status | Milan | Italy | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.