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NCT07609264Not yet recruiting

TB Stigma in the UK: Patients Experiences and Everyday Responses

Making Sense of Tuberculosis (TB) Related Stigma in a Low-incidence Area of the UK: Patients Experiences and Everyday Responses

Source: ClinicalTrials.gov · Last updated 27 May 2026

Brief summary (registry, in English)

Public understanding of tuberculosis (TB) is shaped by sociocultural norms, educational background, and personal experiences. Misconceptions about TB transmission, disease severity, and treatment side effects are widespread, contributing to stigma and fear of social rejection. Such stigma can lead individuals to conceal their diagnosis, limiting access to support, engagement with healthcare, and overall health literacy. TB-related stigma is recognised as a significant barrier to ending the global TB epidemic, affecting quality of life and access to care. Yet in high-income, low-incidence (HILI) countries like the UK, its prevalence, influence, and lived impact remain largely unexplored. Where stigma appears in research, it is often treated as an emerging theme, leaving a critical gap in understanding how individuals with TB, or those caring or supporting them, experience and respond to it. This study adopts a Constructivist Grounded Theory (CGT) approach to examine TB-related stigma in depth. CGT allows the research to explore how people living with TB make sense of, interpret, negotiate, and resist stigma, capturing the dynamic and contextual ways it shapes their lives, identities, and interactions with healthcare systems. By investigating these meaning-making processes, the study aims to illuminate how stigma operates in the UK, providing insights to inform future stigma-reduction interventions, communication strategies, and supportive healthcare practices, ultimately benefiting patients, communities, and the NHS.

Status (registry)
Not yet recruiting
Study type
Observational
Enrollment
20 (estimated)
First submitted
14 Apr 2026
Start date
1 Sept 2026
Primary completion date
1 Mar 2028
Lead sponsor
Bournemouth University
Diseases
Tuberculosis
NCT number
NCT07609264

What you commit to

  • Study type: Observational
  • Planned participants: 20
  • From 1 Sept 2026 to the primary completion date, 1 Mar 2028
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Age

  • Under 18 years of age

Other

  • Lacks mental capacity or is unwilling to consent to participate in the study
  • Lives in an area of TB high-incidence (above 10 cases/100,000 population) or outside of rural and coastal areas of South/Southwest England

Who the study is looking for

  • Aged 18 or over at start of study
  • Resident in rural or coastal areas within South or Southwest England
  • Diagnosed with either active or latent TB within the last 10 years

Criteria the registry did not label

  • This study seeks participants who have been diagnosed with pulmonary TB, extrapulmonary TB, latent TB infection (LTBI), and drug sensitive or drug resistant TB within the last 10 years. Participants may have different cultural and socioeconomic backgrounds and will be resident within a pre-defined TB low-incidence coastal/rural area of the UK.

Age in the registry: 18 years to - · Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
University Hospitals Dorset
Coordinator of this site? Confirm its status
BournemouthUnited KingdomUnknown status

This page is information, not medical advice. Discuss any trial with your doctor.