NCT07720518Not yet recruiting
Spinal Muscular Atrophy and School Transitions
Exploring Educational Transitions in Children and Young People With Spinal Muscular Atrophy: A Qualitative Study of Patient and Family Experiences.
Source: ClinicalTrials.gov · Last updated 22 Jul 2026
Brief summary (registry, in English)
A qualitative questionnaire-based study to explore the experiences of children and young people with Spinal Muscular Atrophy (SMA) and their families regarding school transition and educational participation. The study objectives: To identify barriers to successful educational transition. To advocate for patients and families during the transitional process. To explore experiences of inclusion, access and support within school settings. To understand the coordination between education, healthcare and support services. To inform the development of practical, patient-centred guidance to improve educational transitions for children and young people with SMA.
- Status (registry)
- Not yet recruiting
- Study type
- Observational
- Enrollment
- 20 (estimated)
- First submitted
- 17 Jul 2026
- Start date
- 10 Aug 2026
- Primary completion date
- Nov 2026
- Lead sponsor
- Robert Jones and Agnes Hunt Orthopaedic and District NHS Trust
- Diseases
- Spinal muscular atrophy
- NCT number
- NCT07720518
What you commit to
- Study type: Observational
- Planned participants: 20
- From 10 Aug 2026 to the primary completion date, Nov 2026
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- Not in education
- Not able to comply with the consent process
- Not cognitively able to complete the questionnaire.
Who the study is looking for
- Genetically confirmed diagnosis of Spinal Muscular Atrophy 1, 11 or 111
- In education, in either primary school, secondary school or further education
- Access to internet and either a smart phone, tablet or computer.
Age in the registry: - to 25 years · Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| The Robert Jones & Agnes Hunt Orthopaedic Hospital Coordinator of this site? Confirm its status | Oswestry | United Kingdom | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.