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NCT07818213Not yet recruiting

How Can the Experience of Hospital Outpatient Departments be Improved?

How Can the Experience of Hospital Outpatient Departments for Neurofibromatosis (NF) Patients With Sensory Challenges be Improved? An Experience Based Co-Design Project.

Source: ClinicalTrials.gov · Last updated 14 Sept 2026

Brief summary (registry, in English)

This project aims to improve outpatient departments by working with patients and staff to make these spaces more inclusive for people with sensory challenges (it focuses on people with nerve tumour conditions as they are more likely to have sensory challenges). The project uses a well-established method called experience-based co-design (EBCD), which supports patients and staff to work together. It will run over 4 years.

Status (registry)
Not yet recruiting
Study type
Observational
Enrollment
30 (estimated)
First submitted
3 Sept 2026
Start date
1 Sept 2026
Primary completion date
1 Dec 2028
Lead sponsor
King's College London
NCT number
NCT07818213

What you commit to

  • Study type: Observational
  • Planned participants: 30
  • From 1 Sept 2026 to the primary completion date, 1 Dec 2028
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Age

  • Paediatric patients under 16 years of age.

Other

  • Individuals who are unable to provide explicit informed consent.
  • Temporary staff who have spent less than one shift in their role.

Who the study is looking for

  • Patients aged 16 or over who attend outpatient appointments coordinated by the Guy's and St Thomas' NHS Foundation Trust NF team
  • Patients who identify as having sensory challenges
  • Carers and relatives accompanying patients
  • Staff providing care for people with nerve tumour predisposition conditions at Guy's and St Thomas' NHS Foundation Trust in any job role or banding.

Age in the registry: 16 years to 99 years · Sex: All · Accepts healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Save your city in your profile to sort them by distance.

SiteCityCountrySite status
Guy's and St Thomas' NHS Foundation Trust
Coordinator of this site? Confirm its status
LondonUnited KingdomUnknown status

This page is information, not medical advice. Discuss any trial with your doctor.