NCT07871578Completed
Experiences and Care Pathways Shared on Social Media Regarding 5 Conditions Causing Chronic Pain
Is Lyme Borreliosis Experienced Differently From Other Chronic Pain Conditions? An Infodemiological Analysis of Symptoms, Treatments and Healthcare Pathways
Source: ClinicalTrials.gov · Last updated 13 Oct 2026
Brief summary (registry, in English)
Chronic pain is a major symptom shared by several medical conditions. This study focuses on five well-defined chronic diseases : Lyme Borreliosis (LB), Post-Acute COVID-19 Syndrome (PACS or "long COVID"), fibromyalgia, endometriosis, and rheumatoid arthritis. Although all of these conditions are associated with chronic pain, they differ in several important aspects, justifying their choice for a comparison. The overall objective of this study was to describe the symptoms, treatments, and healthcare pathways associated with these five conditions, as reported by patients on social media platforms and online forums. The specific objectives were to compare PTLDS with the four other conditions across the following aspects: (i) Incompatible symptoms reported by patients; (ii) Different components of pain : physical, emotional, and social; (iii) Healthcare pathways; and (iv) Adherence to treatment recommendations.
- Status (registry)
- Completed
- Study type
- Observational
- Enrollment
- 501 (actual)
- First submitted
- 17 Sept 2026
- Start date
- 17 Mar 2025
- Primary completion date
- 3 Jul 2025
- Lead sponsor
- Central Hospital, Nancy, France
- NCT number
- NCT07871578
What you commit to
- Study type: Observational
- Participants enrolled: 501
- From 17 Mar 2025 to the primary completion date, 3 Jul 2025
- 1 site in 1 country
- Visits and tests: ask the trial team, the registry does not list them
Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.
Who cannot take part
Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.
Other
- none
Who the study is looking for
- posts had to be published on four platforms: Instagram®, Facebook®, Twitter®/X®, and patient forums
- they had to be publicly available (i.e., from open accounts);
- they had to include one or more of the following keywords in French equivalents: "fibromyalgia", "Lyme", "long COVID" (for PACS, because this term is not used by patients), "endometriosis", and "rheumatoid arthritis"
- posts had to be written in French.
Sex: All · Does not accept healthy volunteers
Sites (1)
Sites in registry order. Pick your city on the disease page to sort them by distance.
| Site | City | Country | Site status |
|---|---|---|---|
| CHRU Nancy Coordinator of this site? Confirm its status | Nancy | France | Unknown status |
This page is information, not medical advice. Discuss any trial with your doctor.