Find support, or help research
People near you who know what living with ALS (motor neurone disease) is like, and ways you can help find better treatments.
Support groups in Canada
- ALS CanadaNational charity working to change the reality for people living with ALS through support, advocacy and research investment.All of Canada
- SLA QuébecALS Society of Quebec supporting people affected by amyotrophic lateral sclerosis and their families.All of Canada
- Canadian Organization for Rare DisordersNational umbrella network for organizations and people with rare disorders, providing a common voice to advocate for health policy and services.All of Canada
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Canada and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes ALS (motor neurone disease).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without ALS (motor neurone disease) to compare with. Family and friends can help.