Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
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531 organisations in all countries
Showing 400 of 2936. Choose a country to see them all.
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Alzheimer's Association – 24/7 Helpline
Free 24/7 helpline of the Alzheimer's Association (800.272.3900) giving information and support on Alzheimer's and other dementias, with a live person by phone.
For Alzheimer disease, Frontotemporal dementia, Lewy body dementia
Visit site: alz.org
Alzheimer's Foundation of America (AFA)
Helpline staffed by licensed social workers (daily 9-21 ET; text 646-586-5283), free virtual memory screenings.
For Alzheimer disease
Phone: (866) 232-8484
Visit site: alzfdn.org
American Lung Association - Lung HelpLine
Free line staffed by nurses and respiratory therapists; Lung Health Navigators for people with lung cancer; screening assistance; interpretation in 250+ languages.
For Lung cancer
Phone: 1-800-586-4872 (press 2)
Visit site: lung.org
Anthony Nolan - patient services
Patient helpline for anyone facing a stem cell transplant or CAR-T (Mon-Fri 9am-5pm), telephone emotional support, patient grant, clinical nurse specialists, patients and families forum.
For Acute myeloid leukemia
Phone: 0303 303 0303
Visit site: anthonynolan.org
Asociación Española Contra el Cáncer (AECC)
Free Infocáncer line, 24 hours a day, 7 days a week, with support for patients and families.
For Glioblastoma, Lung cancer, Childhood cancers and 8 more
Phone: 900 100 036
Visit site: contraelcancer.esCancerinfo – Fondation contre le Cancer
Free Belgian cancer information line of the Foundation Against Cancer for patients, relatives and the public with questions about cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.be
Cancerlinjen – Cancerfonden
Support line of the Swedish Cancer Society giving advice and support by phone or e-mail to people affected by cancer and their relatives.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancerfonden.se
Demensförbundets telefonrådgivning
Demensförbundet's telephone advice for anyone with questions about dementia, by advisers experienced in dementia care; Mon-Fri 10-20, Sat 10-12.
For Alzheimer disease
Phone: 010-175 50 56
Visit site: demensforbundet.se
Demenslinjen (Alzheimerforeningen)
Alzheimerforeningen's confidential dementia advice line, open to everyone on every weekday; also answers by e-mail.
For Alzheimer disease
Phone: +45 5850 5850
Visit site: alzheimer.dk
Dementia UK - Admiral Nurse Dementia Helpline
Free helpline and webchat with specialist dementia (Admiral) nurses, virtual and face-to-face clinic appointments, BSL support, clinics for Black, African, Caribbean and Chinese communities.
For Alzheimer disease
Phone: 0800 888 6678
Visit site: dementiauk.orgDementieLijn (Alzheimer Nederland)
Alzheimer Nederland's free phone line offering a listening ear and advice on living with dementia.
For Alzheimer disease
Phone: 0800-5088
Visit site: alzheimer-nederland.nl
Dementsuse Kompetentsikeskus – dementsuse info- ja usaldusliin
Dementia Competence Centre: info and trust line, personal expert counselling for people with dementia and relatives, support groups for relatives.
For Alzheimer disease, Frontotemporal dementia, Lewy body dementia
Phone: +372 644 6440
Visit site: dementsus.eeDeutsche Leberstiftung - Telefonsprechstunde
Expert phone consultation on all liver diseases for patients and relatives (no diagnosis or treatment recommendations); liver-and-cancer leaflets.
For Liver and biliary tract cancer
Phone: 01805 45 00 60
Visit site: deutsche-leberstiftung.de
Đường dây nóng Ngày Mai
Ngay Mai: Vietnamese community-supported hotline project supporting young people living with depression.
For Depression
Visit site: duongdaynongngaymai.vn
Essentiel Alzheimer – Ligne d'information 31 50
Free information line of Fondation Médéric Alzheimer's Essentiel Alzheimer platform, staffed by a specialised social worker who advises carers on administrative, medical and social questions.
For Alzheimer disease
Phone: 3150
Visit site: essentiel-alzheimer.org
Kankerlijn – Kom op tegen Kanker
Free Flemish cancer line where (former) cancer patients and relatives can anonymously get a listening ear, expert advice or information.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: komoptegenkanker.be
Kék Vonal Gyermekkrízis Alapítvány
Free, anonymous line for children and young people, day and night (116 111), and a line for adults worried about a child (116 000).
For Childhood cancers
Phone: 116 111 / 116 000
Visit site: kek-vonal.hu
Kræftlinjen – Kræftens Bekæmpelse
Free Danish phone line of the Danish Cancer Society offering advice and support to anyone with questions about cancer, patients and relatives.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.dk
Krebsinformationsdienst (KID) des DKFZ
Doctors answer cancer questions by phone or e-mail, free, every day from 8:00 to 20:00.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Phone: 0800 420 30 40
Visit site: krebsinformationsdienst.de
Krebstelefon / KrebsInfo – Krebsliga
Free Swiss cancer helpline of the Swiss Cancer League offering professional counselling and support on all questions about cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: krebsliga.ch
La Ligue contre le cancer
Free cancer support line and local centres with supportive care, psychological support, financial aid and help with your rights.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Phone: 0 800 940 939
Visit site: ligue-cancer.net
Linha de Apoio na Demência (Alzheimer Portugal)
Alzheimer Portugal's dementia support line for carers and anyone seeking information, on working days 9:30-13:00 and 14:00-17:00.
For Alzheimer disease
Visit site: alzheimerportugal.org
Macmillan Cancer Support
Free cancer support line every day from 8:00 to 20:00, plus chat, an online community and help with money worries.
For Glioblastoma, Lung cancer, Childhood cancers and 8 more
Phone: 0808 808 0000
Visit site: macmillan.org.uk
MDL Fonds (formerly Maag Lever Darm Stichting)
MDL Hulplijn for questions about digestive diseases, free brochures and patient stories, campaign for hereditary stomach cancer (CDH1).
For Gastric and esophageal cancer
Phone: 033 - 7523550
Visit site: mdlfonds.nl
International organisations
Dementia Alliance International (DAI)
Organisation for people with a dementia diagnosis: free online peer support groups, webinars, Brain Health Hub, resources for care partners.
For Alzheimer disease
Visit site: dementiaallianceinternational.org
International Myeloma Foundation (IMF)
Global myeloma charity: InfoLine (US/Canada toll-free and worldwide number, bookable calls), support group directory, Spanish-language groups, foreign-language resources incl. Hungarian and Polish pages.
For Multiple myeloma
Phone: +1-818-487-7455 (worldwide); 800-452-2873 (US/Canada)
Visit site: myeloma.orgABC Global Alliance (Advanced Breast Cancer)
Global advanced breast cancer platform: peer navigation programme, Honestly Spoken storytelling, webinars, member list.
For Metastatic breast cancer
Visit site: abcglobalalliance.org
Acute Leukemia Advocates Network (ALAN)
Global network of 69 acute leukaemia patient organisations (hosted by the Swiss Leukemia Patient Advocates Foundation); member list helps patients find a national group.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia
Visit site: acuteleuk.org
AGORA - Platform of organisations of people with rheumatic and musculoskeletal diseases from Southern Europe
Regional umbrella of RMD patient organisations in Southern Europe; helps build user-led patient groups and gives them a voice nationally and in Europe.
For Rheumatoid arthritis
Visit site: agora-platform.eu
AIDS Action Europe
Membership network of civil society organisations in Europe and Central Asia; advocacy on medicines access, stigma, testing, harm reduction, HIV criminalisation; Clearinghouse of resources.
For HIV
Visit site: aidsactioneurope.org
Alzheimer Europe
Umbrella of national Alzheimer associations in 39 countries, with a member directory.
For Alzheimer disease, Frontotemporal dementia, Lewy body dementia
Visit site: alzheimer-europe.org
Alzheimer's Disease International (ADI)
Global federation of dementia associations in 100+ countries: member associations list, find local support, dementia information, World Alzheimer Report.
For Alzheimer disease, Frontotemporal dementia
Visit site: alzint.org
Amyloidosis Alliance
Global alliance of amyloidosis patient groups: advocacy, awareness and earlier diagnosis, access to care, patient involvement in research, World Amyloidosis Day, resource library and toolkit.
For Amyloidosis
Visit site: amyloidosisalliance.org
Autism-Europe
European association of autism organisations advancing the rights of autistic people and families: EU advocacy based on the UN CRPD, congresses, awareness campaigns, map of members and services.
For Autism
Visit site: autismeurope.org
Axial Spondyloarthritis International Federation
Worldwide federation of axial spondyloarthritis (incl. ankylosing spondylitis) patient associations; World AS Day, IMAS/IMAP patient surveys, delay-to-diagnosis campaigns, patient resources.
For Ankylosing spondylitis
Visit site: asif.info
Breakthrough T1D (formerly JDRF)
Type 1 diabetes research and advocacy charity: T1D resource library, newly-diagnosed guidance, community, clinical trial information; national affiliates in several countries.
For Type 1 diabetes
Visit site: breakthrought1d.org
Childhood Cancer International (CCI)
Global network of parent and survivor organisations: member directory to find a national group, survivor network and knowledge portal.
For Childhood cancers, Acute lymphoblastic leukaemia, Neuroblastoma
Visit site: childhoodcancerinternational.org
Childhood Cancer International Europe (CCI Europe)
Network of parent and survivor organisations in 38 countries, with a map to find your national group.
For Childhood cancers, Acute lymphoblastic leukaemia, Neuroblastoma
Visit site: ccieurope.eu
CLL Advocates Network
Global network of CLL patient groups: advocacy toolkit, clinical trials hub, resource hub, workshops and webinars; helps build CLL support in every country (individual support stays with national groups).
For Chronic lymphocytic leukaemia
Visit site: clladvocates.net
CML Advocates Network
Patient- and carer-led global network of CML patient groups: advocacy education, World CML Day, 'Know Your CML' app, CML Horizons conference, sharing of best practice.
For Chronic myeloid leukaemia
Visit site: cmladvocates.netCystic Fibrosis Europe
Federation of national CF patient organisations: patient perspective in standards of care, member training and information, patient-driven research (PORG), EU advocacy.
For Cystic fibrosis
Visit site: cf-europe.eu
Digestive Cancers Europe (DiCE)
European umbrella of patient groups for digestive cancers, with a list of its members.
For Colorectal cancer, Liver and biliary tract cancer, Gastric and esophageal cancer and 1 more
Visit site: digestivecancers.eu
ENGAGe - European Network of Gynaecological Cancer Advocacy Groups (ESGO)
ESGO network of 80+ gynaecological cancer patient groups; member list with country filter.
For Ovarian cancer, Cervical cancer, Endometrial cancer
Visit site: engage.esgo.org
ERN PaedCan – ERN for paediatric oncology
European network of paediatric cancer centres with virtual tumour boards and a section for patients and families.
For Childhood cancers, Glioblastoma
Visit site: paedcan.ern-net.eu
EULAR PARE (EULAR network of organisations of People with Arthritis/Rheumatism in Europe)
Network of national patient organisations for people with rheumatic and musculoskeletal diseases (RMDs); EU-level advocacy, patient research partner training, Young PARE, webinars and support for national groups.
For Rheumatoid arthritis, Lupus (SLE), Psoriatic arthritis and 4 more
Visit site: eular.orgEURACAN – ERN for rare adult solid cancers
European network of expert centres for rare adult cancers, including brain tumours; your doctor can bring your case to it.
For Glioblastoma, Liver and biliary tract cancer, Gastric and esophageal cancer and 1 more
Visit site: euracan.eu
Euro-Ataxia
European federation of national ataxia associations (incl. Friedreich ataxia): shares information on care and research progress.
For Friedreich ataxia
Visit site: euroataxia.orgEUROPA DONNA - The European Breast Cancer Coalition
Coalition of national breast cancer forums in 47 countries; member-country list (no website listed for HU, DE, AT, UK). MBC advocacy priority.
For Metastatic breast cancer, Triple-negative breast cancer
Visit site: europadonna.org
General support, international
For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.
European Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
Frontlight is not affiliated with these organisations; we list them because they help. Checked automatically every 90 days.
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