Find support, or help research

Support groups in Germany

• ALS-Deutschland: Verbund der ALS-VereineNationwide federation of German ALS associations that gives people with ALS and relatives a voice and holds a monthly online meeting.
  All of Germany
• ALS-Hilfe Bayern e.V.Munich-based association helping people with ALS and relatives in Bavaria, with patient and relatives meetings and help with aids.
  München
• ALS-mobil e.V.Association of people with ALS and relatives offering information, counselling, help with applications and aids, and meetups in Berlin, Potsdam and Leipzig.
  All of Germany
• ALS-Selbsthilfegruppe Region StuttgartOnline self-help group for people with ALS and their relatives in the Stuttgart region, offering exchange, support and practical tips via Zoom meetings.
  Stuttgart
• Chance zum Leben – ALS e.V.Association supporting people with ALS and their families, funding therapies and aids, raising awareness and offering an ALS guide flyer.
  Enger
• Deutsche Gesellschaft für Muskelkranke e.V. (DGM)German patient association for people with neuromuscular diseases, including ALS, SMA and Duchenne muscular dystrophy; member of the ALS/MND Alliance, SMA Europe and WDO.
  All of Germany
• Diagnose ALS was nun e.V.German association for people with ALS and their relatives, offering advice, support, information and brochures and books for patients, families and children.
  All of Germany

Contact details come from each group's own page and are checked every 3 months.

Help research

You do not need to join a trial to help. Below are the programmes we found in Germany and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.