Find support, or help research
People near you who know what living with ALS (motor neurone disease) is like, and ways you can help find better treatments.
Support groups in Malaysia
- Malaysian Rare Disorders Society (MRDS)Malaysian Rare Disorders Society (MRDS): patient organisation in Malaysia supporting people with rare diseases; member of RDI.All of Malaysia
- MND Malaysia (Persatuan Penyakit Motor Neuron Malaysia)MND Malaysia: patient organisation in Malaysia supporting people with ALS/MND and their families with information and support.All of Malaysia
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Malaysia and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes ALS (motor neurone disease).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without ALS (motor neurone disease) to compare with. Family and friends can help.