Find support, or help research
People near you who know what living with ALS (motor neurone disease) is like, and ways you can help find better treatments.
Support groups in United States
- ALS NetworkServes people with ALS and families in California and Hawaii with free care services, support groups, webinars, research funding and advocacy.All of United States
- ALS United Greater New YorkNonprofit serving people with ALS and families in Greater New York and New Jersey with free care coordination, support groups, equipment loans, advocacy and research.New York
- ALS United Mid-AtlanticSupports people living with ALS and their families in PA, NJ and DE with care services, equipment loans, transportation, resources and advocacy.All of United States
- ALS United Rocky MountainServes people with ALS, families and caregivers in Colorado, Utah and Wyoming with care services, support groups, resources, advocacy and research funding.All of United States
- Genetic and Rare Diseases Information CenterNIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.All of United States
- I AM ALSPatient-led community supporting people living with ALS and caregivers through advocacy, education, community and planning guidance.All of United States
- Les Turner ALS FoundationUS 501(c)(3) foundation serving people with ALS and their families with support services, support groups, equipment loans, education and research funding.Chicago
- Muscular Dystrophy AssociationUS nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS and related neuromuscular diseases.All of United States
- National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes ALS (motor neurone disease).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without ALS (motor neurone disease) to compare with. Family and friends can help.