Find support, or help research
People near you who know what living with Amyloidosis is like, and ways you can help find better treatments.
Support groups in United States
- Amyloidosis FoundationUS nonprofit foundation raising awareness of amyloidosis and providing patient education, support and research funding.All of United States
- Amyloidosis Research ConsortiumUS nonprofit accelerating the development of and access to new treatments for amyloidosis, with patient resources.All of United States
- Genetic and Rare Diseases Information CenterNIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.All of United States
- Northern California Amyloidosis Support GroupNorthern California support groups for people with amyloidosis and their families, offering free quarterly meetings with experts and disease information.All of United States
- National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Amyloidosis.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Amyloidosis to compare with. Family and friends can help.