What shapes participation in cerebral palsy? A Co-produced PEM-CY scoping review with mothers with lived experience.

What was studied

This was a scoping review, which maps what past studies show. It looked at children and teens with cerebral palsy (CP). The focus was how they take part in daily life. This covered home, school and the wider community. All the studies used the PEM-CY, a form filled in by parents or carers. Mothers of children with CP helped plan and shape the review. Some therapists also joined this group.

What they found

The review included studies from different countries. Children took part more at home and less in the community. This was true for how often and how fully they joined in. Families most wanted change in things done in the community. Children with CP took part less than children without a disability. They also got less support from the world around them. Better movement skills and more physical activity were linked to more taking part.

What it means for patients

The authors say children with CP face more barriers to taking part. This was strongest out in the community. They say more activity, adapted places, and family and care support raise taking part. They also say the mothers' input made the review closer to family needs.

Why it is not certain yet

A review can only be as good as the studies in it. The studies looked at links, so they cannot prove cause. All results came from a form that carers filled in. The review was only registered after the work had begun. The abstract does not give how many children were studied.

Source

What shapes participation in cerebral palsy? A Co-produced PEM-CY scoping review with mothers with lived experience.

We restate facts from the source record in our own words. The original wording belongs to its publisher.