Find support, or help research
People near you who know what living with Duchenne muscular dystrophy is like, and ways you can help find better treatments.
Support groups in Canada
- Muscular Dystrophy CanadaNational charity supporting individuals and families living with neuromuscular disorders, including muscular dystrophies, with services and research funding.All of Canada
- Canadian Organization for Rare DisordersNational umbrella network for organizations and people with rare disorders, providing a common voice to advocate for health policy and services.All of Canada
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Canada and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Duchenne muscular dystrophy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Duchenne muscular dystrophy to compare with. Family and friends can help.