Frontlight ResearchEarly access
Find support, or help research
People near you who know what living with Duchenne muscular dystrophy is like, and ways you can help find better treatments.
Support groups in Germany
- Deutsche Gesellschaft für Muskelkranke e.V. (DGM)German patient association for people with neuromuscular diseases, including ALS, SMA and Duchenne muscular dystrophy; member of the ALS/MND Alliance, SMA Europe and WDO.All of Germany
- Deutsche Muskelschwund-Hilfe e.V.Hamburg-based charity supporting families affected by neuromuscular diseases across Germany with counselling, aid applications, school assistance and research funding.All of Germany
- Duchenne Deutschland e.V.Self-help association in Bochum for children and parents affected by Duchenne muscular dystrophy, with awareness work and symposia, supported by a foundation.All of Germany
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Germany and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Duchenne muscular dystrophy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Duchenne muscular dystrophy to compare with. Family and friends can help.