Find support, or help research
People near you who know what living with Duchenne muscular dystrophy is like, and ways you can help find better treatments.
Support groups in India
- BharathMD FoundationBharathMD Foundation: foundation in India supporting people with Duchenne/Becker muscular dystrophy; member of WDO.All of India
- Indian Association of Muscular Dystrophy (IAMD)Registered Indian society serving people with muscular dystrophy, offering diagnosis, therapies, routine health checkups and a patient registration service.All of India
- MD India (Muscular Dystrophy Association India)Indian association for people with muscular dystrophy and their parents, offering DMD resources, care booklets, physiotherapy and nutrition info, registries and sport.All of India
- PPMD IndiaPPMD India: patient organisation in India supporting people with Duchenne/Becker muscular dystrophy; member of WDO.All of India
- Indian Organization for Rare DiseasesIndian Organization for Rare Diseases: national rare disease alliance in India supporting people with rare diseases; member of RDI.All of India
- Organization for Rare Diseases India (ORDI)Organization for Rare Diseases India (ORDI): national rare disease alliance in India supporting people with rare diseases; member of RDI, IPA.All of India
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in India and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Duchenne muscular dystrophy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Duchenne muscular dystrophy to compare with. Family and friends can help.